Representing all people in West Berkshire affected by a neurological condition
Welcome to the new WBNA website. We were unable to resurrect the previous website (wbna.org.uk) for a number of reasons and would like to apologise for any inconvenience arising.
If you would like to contact the WBNA please complete the contact form below and we will get back to you promptly.
We have deliberately omitted to include Committee members e-mail addresses in order to avoid unnecessary spam traffic.
Please find below updates on our current activities:
Nov 2024
Every two years, the national Alliance launches a major survey of the experiences of people with neurological conditions and their carers. The last survey in 2021/22 had more than 9000 responses. Armed with the evidence provided by those responses, the Alliance was able to influence the government and NHSE and convince them make beneficial changes such as setting up the Neuro taskforce.
The 2024 survey closed on November 15th. We intend to publish a report on the outcomes in due course.
Dec 2024
On 28 November 2024, the Parliamentary Under-Secretary of State at the Department of Health and Social Care, announced the setting up of a Neuro Forum following a long-standing campaign led by The Neurological Alliance and partners to find ways to improve care and support for people affected by neurological conditions.
The “Back The 1 in 6” campaign called on UK Governments to establish a Neuro Taskforce to address key challenges facing people affected by neurological conditions
in the UK. This forum will unite clinical leaders, organisations, and people with lived experience of neurological conditions to tackle shared challenges and will aim to drive real progress in areas where UK-wide collaboration is most impactful. It will aim to address unwarranted variation in access to care across the country, and drive person-
centred care.
Jan 2025
This has been a very busy time for the Alliance with a Parliamentary reception at the Houses of Parliament attended by the NHSE medical Director. Sir Stephen Powis and at least 35 MPs. who were asked to be Neuro Champions.
It also saw the launch of a consultation on the Draft National Neurology Specification to which the Alliance responded. The WBNA also responded based on the views of key local partners stressing the gap between the draft proposals and the reality faced by local patients on a day to day basis.
The text of the minimum service levels annexe to the draft specification can be accessed here
March 2025
Brain Awareness Week (10 – 16 March 2025)
The Neurological Alliance is collaborating with the Neurological Alliances of Scotland and Wales, and the Northern Ireland Neurological Charities Alliance, to run a UK-wide campaign calling for greater investment into research on neurological conditions. get involved please click here